Tuesday, June 17, 2014

Option 1: Step 1

Praise The Lord! Today I got a call from NIH, inviting me to there clinic for a screening. YES!!!!  This is the first step to being accepted, so Thursday the 26th I'll be there from 8:30-4:30 getting screened. (which means they will run some of their own scans, lab work, and we'll get to know each other to see if I am a good fit for their trial)  I'll know fairly quickly after Thursday if I'm accepted or not.  Prayers for that screening and that the doctors like what they see :)

An update on other things....my radiation is going well.  My lower back pain is still there but it's not the sharp pain like it was.  However, in a matter of a two weeks the spot in my buttocks is now hurting to the point I can't sit in one position too long.  Also I noticed a new weird pain down my left arm, after a few days I reported it to Dr. Haidy Lee (my radiologist doctor) she then talked it over with Dr. Jae Lee (my oncologist) and they decided to prescribe me a nerve blocker, because what I was experiencing was my lymph nodes swelling to the point they were pinching a nerve.  That medicine worked immediately! However, no sooner then that pain went away, did my left shoulder and neck area start really hurting.  In a matter a 5 days I was in VERY bad pain, so on Monday I discussed this with Dr. Haidy Lee, and she explained the cancer was growing.....sigh.....if in 5 days this is happening, what is going on in other areas of my body?!  So I will start radiation on my neck & clavicle next week to help with the pain.

Ryan and I are taking our time and enjoying each other, trying to slow down and take in each moment and go on small adventures when we can.  Ryan will accompany me on the screening.  At times like these, I realize how much God is in control, from the city we live in, to the places we work, my doctor and the WVCI team, to our church body, family and friends, it's been so humbling the outpouring of help in all forms that is being offered.

We are blessed.
God is good.
No matter what, God is good!


That's all for tonight, I'm in pain and tired-time for a bath :)
This is the syfy spaceship machine that I visit everyday, I named him Norman. 

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