Today Dr.Lee outlined 3 options for next steps...
#1 National Institute of Health: Clinical Trial. All my records have already been sent in for review, and we are waiting to hear back if I qualify or not. One of Dr. Lee's current nurses used to work at NIH, so hopefully that will work in our favor! The best part is that this trial is because of a grant, so that means treatments would be free!! WOW! This is the best option, so prayers that I qualify for this. Oh, it is in Maryland so their would be details to work out, but I'm more then willing to go sight seeing.
#2 Foundation One Medicine. This is where they send a sample of my blood and it gets tested for mutations and genetic stuff (pardon my lack of medical terms...) If they find a mutation, they then search for any new medicine that is our there for me to try. This would most likely be very expensive. My blood work will be sent there this week so they can start de-coding it or whatever.
#3 After my 3 weeks of radiation is done, start chemo again with new chemo drugs. They do not want to do chemo at the same time as I'm getting radiation on my back/spine-I guess it would be a very dangerous combination. Speaking of my radiation-I'm requesting they also do it to my left collar bone area as it is really hurting.
This is all very much in the unknown stage still-but at least it's some good options!! I may get a call this week or in 3 weeks on if I've been accepted or not-so I'll keep you updated as appropiate. At the end of our appointment, Dr Lee said we are in his prayers and he also wanted to tell me how much of an inspiration to him that I have been through this process-very humbling-so I wanted to in turn, thank you all for your prayers for my joy and strength that I have!
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